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We share up to date, practical information, evidence and resources to support you in your work with patients, carers and families. We review and update these resources regularly.
Information, evidence and resources
Strategic Resources
◊◊◊ NHS Greater Manchester Commitments to palliative care individuals approaching or within the last year of life ◊◊◊
The commitments are a pledge to individuals approaching and within the last year of life. The commitments ensure that the care that they receive at this time is individualised, skilfully and sensitively delivered and of a consistently high standard. The commitments support individual choice in line with the Care Act.
NHS GM Commitments to Palliative Care August 2024
◊◊◊ Macmillan Seven Day Enhanced Specialist Palliative Care Advice and Assessment Programme – A summary of key messages from localities ◊◊◊
This is the seven day working summary of key messages. It should be read alongside the full Lancaster University Macmillan seven day evaluation final report. The purpose of this programme was to enhance specialist palliative care services in Wigan and Salford.
Macmillan Seven Day Enhanced Specialist Palliative Care Advice and Assessment Programme PDF
Macmillan 7 Day Evaluation Final Report PDF
◊◊◊ Ambitions for Palliative and End of Life Care: A national framework for local action 2021-2026 ◊◊◊
This framework sets out our vision to improve end of life care through partnership and collaborative action between organisations at local level throughout England.
Ambitions for Palliative and End of Life Care
◊◊◊ The North West Model for Life Limiting Conditions ◊◊◊
The North West Model for Life Limiting Conditions main aim is to ensure that any professionals involved in taking care of people who may be in the last year of life has access to a simple best practice guide to ensure that care is consistent. (Note: The NW model for Life Limiting Conditions replaces the 2015 North West End of Life Model)
Clinical Guidance and Information
◊◊◊ Pain and Symptom Management Guidance ◊◊◊
The fifth edition of the Greater Manchester and Eastern Cheshire Strategic Clinical Networks Palliative Care Pain and Symptom Control Guidelines.
Palliative-Care-Pain-and-Symptom-Control-Guidelines.pdf (england.nhs.uk)
◊◊◊ EPaCCS ◊◊◊
A review and benefits summary undertaken by members of the Greater Manchester and Eastern Cheshire Strategic Clinical Networks, Electronic Palliative Care Co-ordination System (EPaCCS) Network Implementation Group.
Psychosocial and emotional wellbeing support for health and care workers
◊◊◊ Greater Manchester Resilience Hub is providing psychosocial and emotional wellbeing support for all health and care workers who live or work across Greater Manchester. This includes clinical and non-clinical staff, security, cleaners, porters, caters and other ancillary staff… ◊◊◊
They also offer support for all North West Ambulance Service staff.
This offer is also extended to dependents and family members of all health and care staff.
Health and Social care professionals outside of GM to contact their HR departments and organisational intranet for support and guidance if required.
Other resources can also be found at GMHealthHub and Keep well | Greater Manchester Integrated Care Partnership
◊◊◊ Greater Manchester Bereavement Service ◊◊◊
Greater Manchester Bereavement Service can help to find support for anyone in Greater Manchester that has been bereaved or affected by a death, no matter how long ago. No one needs to feel alone as they deal with their grief.
Visit the Greater Manchester Bereavement Service website here
Personalised Care and Advance Care Planning
◊◊◊ Personalised Care Key Cards ◊◊◊
A set of prompt cards designed to support a personalised approach to Advance Care Planning conversations.
Personalised Care Key Card PDF
◊◊◊ Personalised Care ACP Conversation leaflets ◊◊◊
A leaflet for patients explaining ‘What is a personalised Advance Care Planning conversation?’
Data, impact and evaluation
◊◊◊ Making the most of data – meaningful data for meaningful impact ◊◊◊
The GM Hospices Provider Collaborative has produced a short video highlighting the importance of Hospices collecting, recording and sharing good activity and impact data. It is a call to action, both for the Hospices to use and share their data more meaningfully, and for their system partners to engage with it.
Palliative care in care homes and domiciliary care
◊◊◊ The Six Steps Programme ◊◊◊
This programme aims to facilitate organisational change and support staff to develop their roles around end of life care.
Palliative care for people with dementia
◊◊◊ The Rules of Thumb programme ◊◊◊
An education programme based on the Rules of Thumb guide to aid practitioners making end of life care decisions for people with dementia.
eolp.co.uk/SIXSTEPS/rules-of-thumb/
The final project report for the Rules of Thumb pilot can be found here
Rules of Thumb Report Final July 2022
◊◊◊ Dementia United ◊◊◊
Dementia United are working towards improving the quality of life for people living with dementia or caring for someone who has dementia, supporting people to live as independently as possible and providing access to services when needed.
Other groups
◊◊◊ The End-of-Life Care and substance use website provides a wealth of information and support for people who:
(a) use alcohol or other drugs and are concerned that they are seriously unwell;
(b) used alcohol or other drugs in the past and are concerned it will affect the healthcare and other support they need;
(c) care for a family member or friend who uses substances and is (or might be) seriously unwell; or
(d) are a health or social care professional supporting someone who uses substances and has serious and advancing ill-health.
◊◊◊ Palliative and end of life care experiences of people of African and Caribbean descent during COVID-19 (PEACE)….
is a project to understand the priorities of people from African and Caribbean descent at end-of-life and barriers to good end of life and bereavement care [This is a collaborative project involving The University of Manchester]
Visit the project webpage here
◊◊◊ Inequalities video ◊◊◊
This short video clip summarises why some communities have not traditionally found it easy to access hospice and palliative care services and explains some of the specific barriers they face.
Babies, Children and Young People
◊◊◊ GMEC and NWC Children’s and Young People Palliative and End of Life Care ◊◊◊
The North West Palliative and End of Life Care (PEoLC) Network covers Cheshire & Merseyside, Lancs & South Cumbria and Greater Manchester and works with children’s palliative care services. The Children’s and Young Peoples (CYP) palliative care network has three zonal steering groups who meet quarterly.
FAQS For Patients, Carers and Families
If you’re a patient, family member or carer, or anyone who needs further information about palliative or end of life care, please have a look at these links to trusted resources.
